TS Genetics Study

Help us find the Genes for Tourette Syndrome!

Currently there is no cure for TS.  You can take part in helping to find the cure by participating in one of the two TS Research Studies currently in need of volunteers!

THIS IS YOUR CHANCE TO MAKE A DIFFERENCE!!!

The Tourette Syndrome Association International Consortium for Genetics (TSAICG) in collaboration with the National Institute of Neurological Diseases and Stroke (NINDS) and Tourette Syndrome Association (TSA)

The TSAICG has identified several chromosomes that may contain genes for TS.  The TSAICG is collaborating with the National Institute of Neurological Diseases and Stroke (NINDS) and the TSA to continue our genetics studies and confirm these findings.  But in order to do so,

 WE NEED TO ENROLL 3,000 PEOPLE WHO HAVE TS.

 Individuals must have a diagnosis of TS from a doctor and be at least 6 years old.

Adults with TS will answer questions about their own tics and related symptoms.  Parents of youth with TS who are 6 to 17 years old will answer questions about their child’s symptoms.  The answers to these questions will be used to select individuals with TS for the second part of the study.

Adults and youth with TS who qualify will be asked to give a blood sample for genetic analysis.  Only one eligible family member with TS can provide a blood sample.

To learn more about this research please visit the following website:

https://findTSgenes.org

or CALL

1-TS STUDY E 50 (1-877-883-9350)

 Please understand that calling for more information does not obligate you to participate in the study. 

Tourette Syndrome Genetic Study at John Hopkins University Needs Participants!

ABOUT THE STUDY

·         This multi-site study will find the genes that are important in the development of Tourette Syndrome

·         Locating genes will give us an understanding of the biology of TS and make individualized treatments possible.

·         This research is funded by the NIH through the Tourette Syndrome Association and involves six participating university centers.

 HOW CAN I HELP?

Participating in the TS Genetics study will involve

·         A visit to the John Hopkins Hospital in Baltimore OR a home visit by a team member

·         Self-report questionnaires reviewed by a physician

·         A blood draw

·         A 15-minute computer activity

You will be compensated $25 for your participation and all visit expenses will be covered.

WHO IS ELIGIBLE TO PARTICIPATE?

·         Children and adults diagnosed with Tourette Syndrome

·         Participants must be 7 years or older

 This is our chance to help future generations overcome Tourette Syndrome!

 Please call Dr. Marco Grados at (443) 287-2291 or e-mail at mjgrados@jhmi.edu for more information